Liam has volume limits due to delayed emptying of his tummy and reflux. Because he only takes in around 12 ounces of formula a day, we have resorted to getting as many high calorie additives into his solids as we can.
We have accumulated quite an arsenal against the necessity of a gastronmoy tube.
Luckily Liam has continued to slowly gain enough weight to keep a g-tube back in the recesses of our mind.
But, in order to keep him nutritionally supplied we have had to resort to putting high calorie additives, vitamins, and medicines to his solids.
For breakfast Liam gets Soy Baby yogurt or Boost with rice. I then add a scoop of Duocal (dried and powdered oils), his erythromycin (to help with emptying) and choline (great for the brain). This equals 115 calories or more depending on the amount of rice.
He gets a 3-4 ounce bottle Boost with a scoop of Duocal before his midmorning nap. 145 calories.
Lunch is always a jar of chicken (I'm now starting to add a few teaspoons of a veggie to it), scoop of Duocal, his NutriStart multivitamin, and a tablespoon of butter or safflower oil along with a teaspoon of flax seed. 255 calories.
Afternoon bottle of Boost with Duocal. 145 calories.
Dinner consists of a multi nutritional food (mac and cheese with veggies, ham and rice with pineapple, etc.) Duocal, and tablespoon of safflower oil or butter. 285 calories.
Night time bottle of Boost, Duocal and two teaspoons of Miralax. 145 calories.
On a good day, with no vomiting, Liam will take in over a thousand calories with this routine.
On a good day.
We usually don't go a day without vomiting but after increasing his prevacid dose and continuing back on the erythromycin, his reflux has been under better control as of late. While it isn't ideal beacuse he is getting a large portion of his fats through oils, it is enough of a nutritional balance with his jarred foods, Boost and multivitamin to keep him healthy.
And healthy he is as of today. He has been virus free and feeling like his happy, giggly ole self.