23 August 2008

Aug 23

So I got good news from the endoscopy- no damage to my throat. It feels damaged- so I was surprised with that. He said there is no magic pill to take away my symptoms so I don't need to bop around changing Drs. Excuse me? Don't they make reflux meds so people will feel better??? Have someone sit on your chest and try to breath. I feel like that daily. I also hate burping all the time like I've just guzzled a soda. Or, how about getting clogged vocal chords every day that keep you clearing your throat all the time..... I sound frustrated, huh? ;-)

New video of Liam laughing. It's just so sweet to watch his face light up!


video




Irish eyes are smiling:

Smiles are contagious:

19 August 2008

Aug 19

Still no word from VT. I'm bummed. I was hoping we would have started by this week. Liams NICU Dr. called today to check on him. We spent an hour and a half on the phone! How many Dr.'s do you know that would do that? She is a pretty special woman. Of course she asked all kinds of questions about Liam's development. Yes- he's behind.... But- we have faith that he will get there and that the Lord will give Liam everything he needs at the right times.

I would love for Liam to get his head up and keep it up. I am, unfortunately, getting tired of people thinking he is so small. He seems young because of his head control. And I now get irritated when people ask his age. I know- it's my own fault. They have no idea. I used to love telling people how old he was and seeing that look of surprise and then telling them how far he has come. Now I just want him to get his head up so I don't get the comments as much.

I have an endoscopy on Fri for my reflux. I don't mind the test. It's the results that make me nervous. My reflux is aweful and meds have not been able to get it under control in quite some time.... Praying for a good news.

16 August 2008

August 16

  • When a married man dies, his wife is called a widow.
  • When a married woman dies, her husband is called a widower.
  • When a childs parents die, the child is called an orphan.
  • BUT there are no words to describe when your child dies....

13 August 2008

August 13

Well, I found out that if I tickle Liams face while he is on his tummy he will lift his head beautifully. I can't wait to show Kathy (his PT) tomorrow! She's going to love it. Liam is doing better with head control. He is still wobbly but he doesn't drop his head like a lead balloon anymore. We ARE making improvements. I should be hearing from the VT soon and then we can get started on doing some of the therapy needed for his vision. I took Liam in for a check up and he was exactly 12 lbs. I was hoping for closer to 13 lbs. We decided to up his calories with formula to 30 Kcal per ounce. I still pump (it's been almost 9 months) so he does get some breast milk still. It's just that Liam can not handle much volume at all. He will throw it up. We are still stuck at right under 17 ounces a day. He does eat a bit better now which is a relief to my aching back. I can sit with him sometimes now and I don't have to walk fast all the time. Smetimes he latches well and will drink quickly. Usually when a therapist is watching! Ha!

Liam likes to babble these days. He sounds like he is saying real words. It's so cute to hear him talking. At least his head growth was doing well at this check up. He is still underweight and short. But he is getting there. He is finally getting into 3-6 month clothes!

02 August 2008

August 2

I am SO excited that it is finally August. Why? I love the humidity. No really- because Liam will start getting vision therapy at the end of this month. I feel like we are on borrowed time with his vision and because the therapist is off for the summer we are denying Liam opportunities that he needs at such a crucial time. I have bought more black and white toys and books in order to work his processing. It's frustrating to me to know that he can see but that he can't. And that I could help him but don't exactly know how. Liam finally had an improvement from one PT appnt to the next so that was AWESOME news for me. He his finally starting to use some of his muscles properly and we need to keep him going in that direction. He has a hard time trying to get his head up and centered. I know how much happier I will be when he can do that so I know he should be happier too.

I love Liams PT. She is so good with him. And she knows her stuff. She pushed him hard this week tho. He was fine with it until she decided he couldn't straighten his legs when he was mad. Well- that pissed him off and he went over the edge. I think she will back off a bit this next time!

Well- I had every intention of getting the kids "caught" up during the summer but , heck, that just isn't going to happen. What is "caught up" anyway? Look up unschooling and read the definition. That has become us. Am I bothered by that? Sometimes- but only when I compare. When I remind myself that we don't want to be like the gov't run system I can be at peace. But when Rylie compares herself and her skills to her peers she feels like she is behind at some things. But she doesn't see how far ahead she is in others. Does it matter that she doesn't know square roots, pi or the definition of Isosceles? When she needs to know it she will learn and if she doesn't need to she won't. That scares some people. Why? Because some insitition decided that a child should know something at a certain age. How blissfully ignorant they are of a childs natural curiosity, intelligence and desire to learn- especially when it isn't shoved into a time frame.