30 August 2010

I don't know

Liam had a weight check last week. We still keep an eye on his weight to make sure he's getting everything he needs nutritionally and that he's still gaining. I was thrilled to see that he had FINALLY made it up and over the 25 lb mark. I think he was 25 lbs 4 ounces. Or somewhere close. lol And eating about 31 ounces of food a day.

He's steadily gaining now, albeit it ever so slowly. He is averaged about 4 ounces a month. It's not huge, but at least he is finally gaining consistently now. I knew with him no longer vomiting that we should see him finally over 25 lbs.

I really like our pediatrician. She is very sweet and she loves to talk to and watch Liam in the room. Liam always gets very hyper when he's on the table. I think it's the crinkly paper he lays on. Whatever it is, by the time Dr. Kid gets in there, he's flailing like crazy and laughing his heart out. Which always gets Dr. Kid laughing. She usually spends extra time with us just to be able to hang out with Liam.

I pulled him to a sit so she could see how he still has a head lag. But then I showed her what we do to his back to try to prompt him to pick his head up when in sitting. And then she said, "I've never seen a kid with CP do that. Normally they don't move like that." I'm thinking, 'Yeah I've heard!' But it was the first time our ped had said something about Liam being unusual. We've heard it before. A LOT. But not from her.

I talked to her about maybe seeing a new neurologist. Remember my post about our current neuro (who I haven't been back to see since.)? I told her I didn't want to see her again and that maybe we could see someone else who actually might be helpful to me. She put in a referral to the peds neuro department at Chapel Hill. We already have an appointment set up for November. I'm thinking they will want a new MRI since he hasn't had one since he was 3 months old. But, we'll see. I hate having to drive 2 1/2 hours to go, but it will be good to talk to someone else about Liam's bizarre movements or lack of movements.

We talked again with Liam's PT this past week and she said what we've always still felt, that Liam doesn't seem to fit the athetoid CP diagnosis.

I don't think seeing a new neuro is going to change much, but it would be nice to have a positive helpful person on Liam's staff. One with answers would be good too.

post signature